Wednesday, December 16, 2009

Our Mystery Man

There are so many issues that Marcus faces on a daily basis.  I'm not even talking about his vision, low muscle tone, and developmental delay.  There are just some things that make daily living hard for the little guy, and consequently, for us as well.  For the most part, he is a very happy, content, and joyful boy.  But there is 10%  to 25% of the day that is very challenging, to say the least.  I will spare you the details and just say that impatience, frustration, sensory processing difficulty, and sleep issues all come into play.  The most heartbreaking part is that he tries to cope with these the best he can, but it results in bruises, scratches on his head, and perpetually open sores on his knuckles.

All his therapists have different hypotheses on why he has these issues.  They also have some ideas on how to help him, but there are no fixed answers.  Some parents of typical boys have told me of their own struggles with their children as well.  So we know it's a mixed bag of sensory & developmental difficulties, as well as the plain fact that Marcus is a son of Adam.

As his parents, we  feel completely helpless.  It's humbling to think that I am his mom, and yet I can't figure him out and I can't help him at his most desperate times.  But God says that even in this, our boy is "fearfully and wonderfully made".  All the issues I try so desperately to seek answers to, all the google searches, all the questions I've asked to other parents have seemed to fall short.   My comfort is that his Creator knows Marcus inside and out, and for some reason, He has created Marcus with these challenges in love and for good.

I found myself holding my boy, crying out to the Lord in full-tear mode this week.  Since I can't figure him out and I for sure can't "fix" him, it's only right for me to beseech the only One who can.  And until the answers appear (if they ever do), my heart is forced to rest in His love.

Romans 8:32 He who did not spare His own Son, but delivered Him over for us all, how will He not also with Him freely give us all things?

9 comments:

thekimfam said...

thanks for sharing, unni. praying for you this week! what a comfort to know that the Lord knows ALL things perfectly, and loves and cares for our children infinitely more than we do. love you!

Amie said...

Thanks for sharing Sue...such a good reminder of how my heart should always be with my girls- dependent, and utterly helpless before the throne.
We love totally love and pray for you guys often...

thechungs said...

always so encouraged by your posts!!! we love the lees and will continue to pray for you guys.

Susie Pyo said...

Such an encouraging post Sue. Thank-you for sharing your heart. You are such a godly example of what it looks like to have joy and trust in the Lord in all circumstances. I'll be praying for you...

The Jhungs said...

Thanks so much for sharing, sister! You continue to be an example to me of trusting in the Lord during trying times. Love you!

Sarah said...

IN the midst of this busy day, thank you for causing me to pause and give thanks for His goodness and perfect ways and will. Love you, sister! Thanks for fighting the good fight!

sohee said...

thanks for sharing Sue! And above all, thanks for persevering in the Lord.

bookbloggyblogg said...

What a beautiful perspective. That one's going to stick with me for a while. :)

Tara said...

Thank you for sharing this. What a beautiful reminder and scripture.

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