Friday, May 14, 2010

Perinatologist Appointment #2

So after a restless night, and both Mike and I falling asleep while praying for God's abundant grace today, I'm so thankful to be able to say that God has encouraged us tremendously through today's appointment.

Since my 1st Trimester nuchal fold measurement was so alarmingly high, the doctor did  a customary evaluation of the baby's growth to look for other soft markers of Down Syndrome, as well as other risks the baby could face.

Here's what he found:  The bones measured normal, as well as the nasal bone (both soft markers for DS).  He was also happy to see that the heart appeared normal.  Another amazing find...the nuchal fold measurement is also normal for the baby's current age.  Based on these findings, our risks for Down Syndrome have been cut by 50% to 80%.  We consider this a great encouragement!

So far, the brain has also appeared normal, but we will see him again in a month, when he will be able to take a better look at the cerebellar vermis...the part of the brain affected by Joubert Syndrome.  Marcus has a mild abnormality in his vermis and that is how he was diagnosed with JS.  Even if the doctor doesn't find anything, there is still a chance that the baby could be affected.  But we are praying for another encouraging appointment.  More importantly, praying for God to increase our small faith, to strengthen our feeble trust in Him, and to solidify our hope in Christ alone.

This past month, our hearts have been burdened for this baby...with a heavy weight of the unknown.  But we are so thankful for what the Lord has already taught us and allowed us to experience through this miraculous life inside of me.  We are learning a lot about God's grace...that we need His grace on a daily basis, and that in times of weakness, He seems to give it to us abundantly.

2 Corinthians 12:9-10

But he said to me, "My grace is sufficient for you, for my power is made perfect in weakness." Therefore I will boast all the more gladly of my weaknesses, so that the power of Christ may rest upon me.  For the sake of Christ, then, I am content with weaknesses, insults, hardships, persecutions, and calamities. For when I am weak, then I am strong.

I don't know why He allowed us to get pregnant, and why He has allowed us to be faced with the risks of another child with special needs when our hearts are already so burdened for Marcus.  But boy, do we have much to boast about.  All of our disappointments, fears, and weaknesses force us to rely on the grace and strength of our Savior.  And we wouldn't trade that for the world.

We are definitely not "in the clear" yet with the health of this baby.  We may not even have a definitive answer until months after his birth.  So we are continuing to ask Him to help us boast in Him day to day to day to day.

On a lighter note, it was so sweet to see our boy again.  He was not shy at all about showing us his "parts" and in fact was very forward about it.  The doctor showed us a shot of his "goods" and said it was his first x-rated picture.  Figures...Audrey has no concept of privacy either.  He was also doing some major acrobatics, or martial arts, or something.  So much so that the doctor jokingly reprimanded him for being uncooperative during the ultrasound.  He looked at us to see who he got it from and all we could say was "Sorry, he's a Lee."  The kid is already being a rascal...just like his brother and sister.  :-)


jane said...

my heart is filled with joy...and LOVE for my precious nephew! i can NOT wait to hold him in my arms and give him millions of eemo kisses. so thankful for God's grace to you guys today.

cathie hong said...

praise God, sue!!!!!! i am SO SO happy for you guys & thankful that He's revealing more of His immeasurable grace to you during this time! so encouraged by your family. and that shot of baby lee is so precious :]

Rachel said...

I'm so thankful for you guys and for God's goodness to you in the midst of your trials. Praise God that the appointment went well!

Sharon said...

praise the Lord! that is such encouraging news. We'll continue to lift prayers up for your family. Love ya guys!

Caryn said...

What a sweet pic! Your honesty and faith in the Lord is so encouraging! Thanks for visiting my blog and writing a comment. May the Lord continue to bless both of us as we travel this road striving to trust Jesus at every step.

sarah said...

the sonogram image reminds me of Psalm 139, esp. verses 13-16:
For You formed my inward parts;
You wove me in my mother's womb.
14I will give thanks to You, for I am fearfully and wonderfully made;
Wonderful are Your works,
And my soul knows it very well.
15My frame was not hidden from You,
When I was made in secret,
And skillfully wrought in the depths of the earth;
16Your eyes have seen my unformed substance;
And in Your book were all written
The days that were ordained for me,
When as yet there was not one of them.


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